Tag Archives: consumer

The NHS Breast Screening Programme – a consumer’s perspective

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Mitzi Blennerhassett1
1Patient advocate, York, North Yorkshire, UK

Introduction: Integration between oncology and palliative care

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Irene Higginson1
1King's College London, London, UK

Improving information for patients participating in European research

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Liz Flackett1, Karen Inns1, Anastassia Negrouk2, Poulam Patel1
1National Institute for Health Research Clinical Research Network:NIHR CRN: Cancer 2European Organisation for the Research and Treatment of Cancer (EORTC)

Vision on information, confidence and engagement – A science for advocates course.

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Maggie Wilcox1, Adrienne Morgan1, Mairead Mackenzie1
1Bart & the London Cancer Institute, London, UK

Give Us The Tools   The Consumer Liaison Group’s Toolkit for Effective Consumer Involvement   on Academic Research Groups and Committees

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Matthew Baker1, Richard Stephens1
1NCRI Consumer Liaison Group (CLG)

‘Ok to ask’: young people’s views about access to and participation in research

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Rachel Taylor1, Jeremy Whelan1,2, Anita Solanki1, Natasha Aslam1, Lorna Fern1,2
1University College London Hospitals NHS Foundation Trust, London, UK,2National Cancer Research Institutes Teenage and Young Adult Clinical Studies Group, London, UK

Writing Patient Information Sheets: Experience at the MRC Clinical Trials Unit at UCL

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Richard Stephens2,1, Claire Murphy1, Ben Cromarty1, Bec Hanley1, Annabelle South1, Claire Vale1
1PPI Group, MRC Clinical Trials Unit at UCL, London, UK,2NCRI Consumer Liaison Group, London, UK

Are We Making A Difference?   Assessing the Impact of Consumer Involvement on the work of the NCRI’s Clinical Studies Groups

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Janette Rawlinson1, Richard Stephens1
1NCRI Consumer Liaison Group (CLG)

The changing landscape of a clinical trials unit:  working towards making patient and public involvement part of the culture of our organisation

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Claire Vale1, Annabelle South1, Claire Murphy1, Bec Hanley1, Karen Scott1, Ellen Owen-Powell1, Richard Stephens2,1, Ben Cromarty1, Ben Spittle1
1PPI Group, MRC Clinical Trials Unit at UCL, London, UK,2NCRI Consumer Liaison Group, London, UK

The Patient Portal: Piloting Patient Access To Cancer Registry Records

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Sarah Stevens2, William Jones3, Michael Chapman1, Sara Hiom1, Jem Rashbass2
1Cancer Research UK, London, UK,2National Cancer Registration Service, Cambridge, UK,3brainstrust, Leeds, UK