A155: Defining a standard set of patient-centered outcomes for patients with lung cancer
1Patient Representative, Glasgow, UK,2International Consortium for Health Outcomes Measurement, Cambridge, MA, USA,3Harvard Radiation Oncology Program, Boston, MA, USA,4Department of Respiratory Medicine, University Hospitals of Leicester, Leicester, UK,5Clinical Lead, National Cancer Intelligence Network (NCIN), Public Health England, London, UK
Measurement of value is increasingly important in cancer care. Lung cancer, with its breadth of treatment approaches, poor survival outcomes, and wide range of associated costs, is under particular scrutiny. To date, measurement of outcomes, key to measuring the value of care, has been mostly limited to survival. Proper assessment of the value of lung cancer treatments and the performance of institutions delivering them requires more comprehensive measurement of outcomes.
The International Consortium for Health Outcomes Measurement (ICHOM) convened an international, multi-disciplinary working group of patient representatives, medical oncologists, surgeons, radiation oncologists, pulmonologists, palliative care specialists, registry experts and specialist nurses to review existing data and practices. Using a modified Delphi method, the group developed a consensus Standard Set of outcomes that were felt to matter most to patients, along with case-mix variables for risk adjustment, that we recommend collecting for all lung cancer patients.
The recommended Standard Set covers non-small cell and small cell lung cancer, including those treated with curative or palliative intent. The outcomes included are survival, complications during or within six months of treatment, and patient-reported domains of health-related quality of life, pain, fatigue, cough, and shortness of breath. Baseline demographic, clinical, and tumor information are included to improve interpretation of comparisons.
We defined a Standard Set of outcomes for lung cancer patients. The Set provides a universal rubric for outcome comparisons, with the ultimate goal of improving the value of care.