RCR4: Demonstrating an Effective Model of Patient and Public Involvement in Cancer Research

Ellen Donovan1,2,Sophie Gasson2,David Chuter2,Robert Flavel2,Maggie Wilcox2,Helen-Teresa Edwards2

1Royal Marsden NHS Foundation Trust/Institute of Cancer Research, London, UK,2KSS Local Research Network, Kent, Surrey and Sussex, UK

Presenting date: Tuesday 3 November
Presenting time: 13.10-14.00

Background

 

 

 

Patient and public involvement (PPI) in health research is rightly being given prominence. We show with a case study how this has been achieved by an experienced patient group (The Cancer Partnership Research Group) and a researcher working closely together. An interesting, and unusual aspect, of our case study is that it was not a clinical trial being proposed by a clinician, but a physicist aiming to develop a physics concept into a tool to benefit patients.

 

 

 

Method

 

 

 

The initial aim of CPRG involvement in this project was to assess whether the concept was relevant to cancer survivors. This began by the researcher attending a meeting to present the idea and continued via email. Once the relevance of the research was established the CRPG and the researcher worked together to identify PPI for the project, including the funding requirements to enable ongoing support for PPI throughout the project lifetime. The CPRG actively helped the researcher to prepare for an interview with the funding body.

 

 

 

Results

 

 

A Career Development Fellowship was awarded by the NIHR for this project. The CPRG input was invaluable and the quality of the PPI in the application and presentation complimented at the interview. The researcher has continued to benefit from the experience of the CPRG and has become an active member of the CPRG, giving support to the group. Valuable funding for the CPRG was incorporated into the funding bid enabling the group to continue to provide quality PPI for this project.

 

Conclusion

 

 

This case study shows a mode of effective PPI and collaboration and is unusual since the researcher is a physicist, not a clinician. This example of PPI will hopefully motivate other researchers to involve patients and public in their research, helping to ensure that research is always relevant to, and for, the benefit of patients.