Project Swallow: Living with oesophageal cancer


Session type:

Henry Goodfellow1,Elizabeth Murray1,Kathy Pritchard-Jones2,Chris Robson3,Muntzer Mughal4
1university college London,2UCL partners,3Living with,4UCLH



Centralisation of oesophageal cancer care improves outcomes and reduces healthcare costs but it can also affect the patient experience and increase the administrative burden on healthcare staff. Under a centralised care pathway, patients lose the continuity of care as they are transferred between different hospital trusts, travelling further whilst unwell.


To create two digital health interventions (DHI), delivered through a computer software, to be used by healthcare staff, and a mobile phone app for patients and their carers.


  • Improve patient experience
    • Provide one source of reliable health and support information individualised to patients
    • Improve communication with their care team.
  • Improve health service efficiency.
    • Reduce the administrative burden on HCPs
    • Improve auditing across sites for adherence to pathway and cancer wait times
    • Reduce DNA rates and A+E attendances
  • Improve health outcomes
    • More patient centred care decisions (quality vs quantity)
    • Standardise care across hospital trusts.


Multi-disciplinary approach consisting of PPI, academics, clinicians, Commercial “Living with” who have expertise apps for the NHS and cancer charity Macmillan. The project is divided into 4 main work packages.

  • Summarising the evidence base with a literature review
  • Determining using needs using qualitative methodology.
  • Designing the Digital health interventions using the principles of agile participatory design.
  • Refining the prototype with a small non clinical pilot.


Poster outlining the protocol and logic model of the project


Our vision is that every patient with cancer will have personalised digital support throughout their cancer journey.