Segmenting the 2 million – new understanding of people living with cancer


Session type:

Lucy Irvine1, Hannah McConnell2
(NCIN) National Cancer Intelligence Network, 2Macmillan Cancer Support, London, UK


Research shows that two million people are currently living in the UK with a cancer diagnosis, predicted to increase to four million by 2030. There's little granular information on this cancer survivor population. As part of a Macmillan-NCIN programme national cancer datasets are being used to describe the cancer prevalence population including their characteristics and needs, to add new evidence of what is known about the cancer survivorship population.


This work uses patient level national datasets including the National Cancer Data Repository (NCDR), to build our understanding of the people living with cancer in the UK. The initial stage of this analysis looks at people diagnosed with cancer between 1991-2010. We identify/define people alive with cancer at the end of this period and then explore the characteristics of this population using a combination of parameters including cancer type, age, gender, locality, ethnicity, deprivation, time since diagnosis and care pathway.


Results of the methods applied and analysis will be available to present in November 2013.


Understanding the burden of cancer, the characteristics of and outcomes for people living with cancer is crucial in ensuring that we can make personalised care a reality for people with cancer. For the first time we will have an accurate picture of who the people living with cancer are and where they are at a level which will help commissioners, providers and others.

Incidence, mortality and survival and detailed breakdowns are regularly published. Our work uses patient level data to quantify a united picture of need across the whole cancer care pathway for the UK which is essential to understand the full burden of disease.