Tag Archives: consumer

The NHS Breast Screening Programme – a consumer’s perspective

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Mitzi Blennerhassett1
1Patient advocate, York, North Yorkshire, UK

Introduction: Integration between oncology and palliative care

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Irene Higginson1
1King's College London, London, UK

Improving information for patients participating in European research

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Liz Flackett1, Karen Inns1, Anastassia Negrouk2, Poulam Patel1
1National Institute for Health Research Clinical Research Network:NIHR CRN: Cancer 2European Organisation for the Research and Treatment of Cancer (EORTC)

Vision on information, confidence and engagement – A science for advocates course.

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Maggie Wilcox1, Adrienne Morgan1, Mairead Mackenzie1
1Bart & the London Cancer Institute, London, UK

Give Us The Tools   The Consumer Liaison Group’s Toolkit for Effective Consumer Involvement   on Academic Research Groups and Committees

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Matthew Baker1, Richard Stephens1
1NCRI Consumer Liaison Group (CLG)

‘Ok to ask’: young people’s views about access to and participation in research

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Rachel Taylor1, Jeremy Whelan1,2, Anita Solanki1, Natasha Aslam1, Lorna Fern1,2
1University College London Hospitals NHS Foundation Trust, London, UK,2National Cancer Research Institutes Teenage and Young Adult Clinical Studies Group, London, UK

Writing Patient Information Sheets: Experience at the MRC Clinical Trials Unit at UCL

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Richard Stephens2,1, Claire Murphy1, Ben Cromarty1, Bec Hanley1, Annabelle South1, Claire Vale1
1PPI Group, MRC Clinical Trials Unit at UCL, London, UK,2NCRI Consumer Liaison Group, London, UK

Are We Making A Difference?   Assessing the Impact of Consumer Involvement on the work of the NCRI’s Clinical Studies Groups

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Janette Rawlinson1, Richard Stephens1
1NCRI Consumer Liaison Group (CLG)

The changing landscape of a clinical trials unit:  working towards making patient and public involvement part of the culture of our organisation

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Claire Vale1, Annabelle South1, Claire Murphy1, Bec Hanley1, Karen Scott1, Ellen Owen-Powell1, Richard Stephens2,1, Ben Cromarty1, Ben Spittle1
1PPI Group, MRC Clinical Trials Unit at UCL, London, UK,2NCRI Consumer Liaison Group, London, UK

The Patient Portal: Piloting Patient Access To Cancer Registry Records

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Sarah Stevens2, William Jones3, Michael Chapman1, Sara Hiom1, Jem Rashbass2
1Cancer Research UK, London, UK,2National Cancer Registration Service, Cambridge, UK,3brainstrust, Leeds, UK

Patient information-one approach fits all?

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Alison Stillie1, Anna Bryans2, Rob Gilhespy2, Kerr Hartop2, Sarah Jack2, Becky Price2, Eilidh Simpson2
1Edinburgh Cancer Centre, Edinburgh, UK,2Edinburgh University Medical School, Edinburgh, UK

Keeping the customer satisfied: it is OK to ask – who are we asking, and who participates? Further findings from the National Cancer Patient Expereince Survey

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Carolyn Morris1, Robert West2, Richard Stephens1, Matthew Baker1, Ekaterini Blaveri5, Rachel Brannan5, Sheila Fisher3, Jane Hanson4, Karen Inns3, Sue Pavitt2, Karen Poole3, Reg Race6
1NCRI Consumer Liaison Group, London, UK,2Leeds Institute of Health Sciences, University of Leeds, Leeds, UK,3NIHR Clinical Research Network Cancer, Leeds, UK,4NIHR Clinical Research Network :Kent, Surrey, Sussex, Sussex, UK,5National Cancer Intelligence Network , Public Health England, London, UK,6Quality Health, Chesterfield, UK

Keeping the customer satisfied : it’s OK to ask – who are we asking?  – variations by type of cancer. Further findings from the National Cancer Patient Experience Survey

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Carolyn Morris1, Robert West2, Richard Stephens1, Matthew Baker1, Ekaterini Blaveri5, Rachel Brannan5, Sheila Fisher3, Jane Hanson4, Karen Inns3, Sue Pavitt2, Karen Poole3, Reg Race6
1NCRI Consumer Liaison Group, London, UK,2Leeds Institute of Health Sciences, University of Leeds, Leeds, UK,3NIHR Clinical Research Network Cancer, Leeds, UK,4NIHR Clinical Research Network :Kent Surrey Sussex, Sussex, UK,5National Cancer Intelligence Network , Public Health England, London, UK,6Quality Health, Chesterfield, UK

Changing the Formula – Consumers Working With Pharma   The NCRI Consumer Liaison Group’s work with AstraZeneca to develop a model for Consumer Involvement in Industry Research

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Richard Stephens1
1NCRI Consumer Liaison Group,2NIHR CRN: Cancer, Leeds, UK (CLG)

Keeping the customer satisfied:is taking part in research associated with better experience of care?Findings from the National Cancer Patient Experience Survey

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Carolyn Morris1, Robert West2, Richard Stephens1, Matthew Baker1, Ekaterini Blaveri5, Rachel Brannan5, Sheila Fisher3, Jane Hanson4, Karen Inns3, Sue Pavitt2, Karen Poole3, Reg Race6
1NCRI Consumer Liaison Group, London, UK,2Leeds Institute of Health Sciences, University of Leeds, Leeds, UK,3NIHR Clinical Research Network Cancer, Leeds, UK,4NIHR Clinical Research Network Cancer, Kent Surrey Sussex, UK,5National Cancer Intelligence Network, Public Health England Network: Kent Surrey Sussex, London, UK,6Quality Health, Chesterfield, UK